Author Archives: jaysseh

AUTISM SUCKS YES IT DOES KEEPS ME OUT OF MAINSTREAM LIFE. I MET SOMEONE TODAY WHO SEES BEYOND MY AUTISM .  SHE WANTED TO KNOW ME. THATS HARD EVEN AT MY BEST IM SUPER DISABLED.  YOU DONT HAVE  TO SPEND … Continue reading →

It has been a happy few weeks for Coco.  Any autism mom knows not to take those moments for granted.  And I know that the wind can change at any moment.   But Coco is happy so Momma is happy. … Continue reading →

  Coco and I are reading another book by one of her favorite authors, naturalist Sy Montgomery.  As she posted a few months ago, it was Montgomery’s Soul of an Octopus that inspired in us both not only an obsession with … Continue reading →

Coco had a language arts assignment tonight to describe a challenge she has had in her life and what she might have learned from it or how it changed her.  The directions are to write non-stop for ten minutes.  We … Continue reading →

This is the first poem that Coco has been inspired to write for a few weeks.  We are having a beautiful, lazy, beach-filled summer.  This poem expresses Coco’s love for summer but specifically, it was her response to reading an … Continue reading →

ANOTHER MASTERPIECE FROM JK ROWLING.  HARRY IS A REMINDER AND A SYMBOL TO US OF WHAT A HERO IS.  CAN BE KIND OF A HARD HEAD BUT ALWAYS ACTING WITH THE BEST OF INTENTIONS, HARRY FIGHTS THE GOOD FIGHT.  SEEING … Continue reading →

Tonight we attended a picnic to celebrate the end of the year with Friendship Circle.  Coco’s best buddy, Rebecca, is graduating.  Rebecca’s friendship, and everything about Friendship Circle, has been the greatest gift to Coco.  Tonight, Rebecca and Coco exchanged … Continue reading →

ENTIRELY ALONE AMONG PEOPLE DO THE VOICELESS SUFFER… Continue reading →

Coco and I had a very interesting conversation tonight. I am sharing it with her permission. Some press came out today about amazing developments in Rett Syndrome research.  Scientists are extremely close to gene replacement clinical trials. I asked Coco … Continue reading →