Coco and I had a very interesting conversation tonight. I am sharing it with her permission. Some press came out today about amazing developments in Rett Syndrome research. Scientists are extremely close to gene replacement clinical trials. I asked Coco what she thought of this. I also asked her why she doesn’t identify herself as a Rett girl. She continues to call herself an autistic. Not a girl with autism, but an autistic. This may not sound very PC but I allow her to be the authority on what she chooses to label herself.
A MENTALITY OF DISABILITY IS WHAT GIVES RISE TO LABELS. ALTHOUGH I AM ATYPICAL FOR RETT ALSO AM I ATYPICAL FOR AUTISM. DISABILITY IS A STATE OF MIND. DONT PRESUME TO KNOW THE INNER WORKINGS OF ANYONE YOU MEET. I AM ME. I AM SUPER AWFUL AT CONTROLLING MY BODY. BUT I AM SUPER GOOD AT LOTS OF STUFF. EVERYONE HAS ABILITIES AND DISABILITIES. YOU CANT SUM ANYONE UP WITH A LABEL. AUTISM CAN MEAN A NUMBER OF THINGS AND I FEEL COMFORTABLE WITH OTHER AUTISTICS. CAN I CALL MYSELF THAT?
OK. DAD JUST BELIEVES IM AN ALIEN FROM OUTER SPACE. EVERYONE ASSUMES WHAT THEY WANT.
I don’t think Dad really thinks you’re an alien.
EAGER TO APPLY MY ABILITIES FOR DOING GOOD IN THE WORLD. DONT BOX ME IN